USA Charities and Organisations

The following Websites are central sources of information and provide links to a great number of other more localised or specialised websites.

America Share Foundation - no longer exists
An Answer to the Transplant-Organ Shortage?
Xenotransplantation; baboon bone marrow transplant to beat aids; pigs liver saved life of man with deadly hepatitis; pros and cons of xeno-organ transplants.
Bone Marrow Transplantation
A very comprehensive and detailed site. There are 12 chapters each on a specific aspect of bone marrow transplantation.
Sorry, this link didn't work because I missed different USA/(UK) spellings of special(i)ty!
Coalition on Donation
A project to educate the public about organ and tissue donation, correct misconceptions about donation and create a greater willingness to donate.
The Coalition on Donation
TransWeb Coalition on Donation site.
Donor Network of Arizona
A vital link for organ, tissue and eye recovery. A full service, professional organisation working with donor hospitals, transplant centres, UNOS and a member of the Arizona Coalition on Donation.
End-Stage Renal Disease: Choosing a Treatment That's Right For You
This site is from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
BODY is grateful to a kidney patient reader for this and the next link.
Kidney Disease and Dialysis
Ethics
Presumed Consent; Financial Incentives; Preferred Status (Opt In).

Michigan Transplant
Transplantation and Donation at the University of Michigan Medical Center. A major development is the TransWeb service: Please Note - the TransWeb site now has its own main address (URL). However the earlier University versions are still operational.

Ocular
Extensive information on Eye Donation and Corneal Transplantation.
OPOs - Organ Procurement Organisations
An America Share Foundation listing of names and addresses of all the American OPOs.
NOVARTIS PHARMA Transplant Square
An interactive site giving service to the worldwide transplant community - patients, healthcare professionals, support networks and other interested audiences. Previously SANDOZ but renamed NOVARTIS contains information on Donor Action a 1994 joint international initiative involving three organisations to increase organ donation. The organisations are Eurotransplant (The Netherlands), Organizacion Nacional de Transplantes (Spain) (independent account - at the end of a long page) and The Partnership for Organ Donation (USA)
Willed Body Programme
University of California Irvine universal programme re Whole Body Donation for medical science after death. A section gives Facts on Organ Donation in America including approximate preservation times for organs from donor to recipient and patient/transplanted organ 1 year survival percentages.
UNOS United Network for Organ Sharing Transplantation Information Site
A further resource for the public and health care professionals. Contains Transplantation Facts and Statistics; Policy Proposals for public comment; Calendar of UNOS Events.

Listed below are a further six websites. The first three give many links to other related websites and the other three are medical library sites.
List of Internet Resources -- Transplantation
Other Related Web Sites
A major link page within the American Share Foundation site containing some 13,000 links!
Transplant Resources on the Internet

WWW Virtual Library: Biosciences: Medicine
HyperDOC: U.S. National Library of Medicine (NLM)
University of Washington Health Sciences Center

FRANCE A.D.O.T. homepage or FRANCE A.D.O.T. group addresses. Both in French only and containing large image files.
Bone Marrow Transplants Worldwide
A very comprehensive source of information involving 40 donor registries from 28 participating countries.
Cliniques universitaires Saint-Luc
Contains hospital minimal information concerning resources, annual number and type of organ transplants.
European Transplant Coordinators Organisation - ETCO. This website no longer available. Has been superceded by the International Transplant Coordinators Society and Eurotransplant websites - see under New Websites-Europe

Australian Transplant and Dialysis Group.
Brazilian Kidney Transplant Registry
Comprehensive source of transplant information for South America with many tables, charts and graphs.
MOHAN
Multi Organ Harvesting Aid Network is a one page Indian website; in English.
M.O.R.E. Program of Ontario
The M.O.R.E. - Multi-Organ Retrieval and Exchange - program is a mission to improve transplantation, based in Ontario.
Multi-Organ Transplant Program
A London Health Sciences Centre transplant facility in Canada.
The Multi-Organ Transplant Program at the London Health Sciences Centre is one of Canada's leading transplant programs, performing about 200 transplants annually. Many types of transplants are done at our hospital: bone marrow, bowel, heart, heart-lung, kidney, liver, and lung. Researchers continue to investigate the immune system and ways to prevent rejection as well as new strategies to increase the number of organs for transplant.

Members, affectionately called the Harefield Hamsters because of the puffy faces associated with steroid anti-rejection drugs, are of all ages and will have received transplanted hearts, heart/lungs or lungs.

As well as giving individual support to those who have received or are waiting for transplants the Hamsters have a lively social calendar. There is an annual Reunion Weekend; members have flourishing Badminton and Volleyball Teams and organise an annual fundraising "jog". The club is well represented and very successful at the British and European Transplant Games.

Fundraising has always been an important task of the Club. The Harefield Hospital Supporters Club was formed in 1994 and has raised £450,000 to date. The aim is to raise £1.5M to purchase a Ultrafast CT Scanner.

Funds are raised by means of the Annual Harefield Fete; the Harefield jog,; "Healthy Heart " walks, and the London Marathon as well as raffles, coffee mornings and various sporting events.